Palmoplantar Pustulosis is a rare chronic skin disease and generally there are not many statistics on PPP out there. According to some researchers PPP is part of the psoriasis family, and to others it is not. The views differ as the genetic predispositions are not the same for both psoriasis and PPP. The crops of pustules may occur with psoriasis, or like in my case without any other form of psoriasis at all.
Different studies are showing a different prevalence rate when it comes to how common amongst the population Palmoplantar Pustulosis are, depending on which country the statistics has been pulled from.
The Swedish dermatology department has an outpatient data register which found an incidence of PPP in relation to other skin diseases in 0.37 percent of patients. Patients with signs of psoriasis elsewhere on the body were excluded in this study. This gives a prevalence of PPP in Sweden of about 0.05%. Just like any other autoimmune disease the majority of the patients are women (75-82%) and the age at onset is usually between 40 and 60 years. The study is from 1971, so these numbers have most likely increased since then. (Enfors & Molin 1971, Hellgren & Mobacken 1971).
In a more recent study from 2019 researchers pulled out data from the healthcare registries and insurance databases in the US, Denmark and Germany and got an estimate during a 1-year prevalence of 0.009%, 0.005% and 0.08% in each country.
At the time when I was diagnosed with Palmoplantar Pustulosis I was quite frustrated with the lack of information out there regarding this skin disease. During a painful and lonely period of my life, I had a huge need to read about and hear from other people in the same situation as me, I wanted to know how other people were dealing/coping with this condition and if there was a chance of recovery and getting into remission. But there was very little information to be find back then. Personally I had never heard of nor met anyone with PPP before my diagnosis and this was quite frustrating. I had a big need to understand what type of disease PPP is and to find out how to overcome it if possible. Obviously I read all the major medical sites about Palmoplantar Pustulosis, but I couldn't find much info from actual sufferers, real people. I followed a few on Inspire (a medical forum) but there was no one there at the time which I followed who had healed from PPP (that I know of).
Readers who follow my blog and who have read my book, know that it was around the time of my diagnosis when I decided to take matters into my own hands to help myself to recovery. My philosophy was/is - if I could impair my own immune system by diet and lifestyle i could also turn things around again and fix it. So I started my research by reading a lot of books and medical reports on the subject.
After putting my newly discovered knowledge into practice I successfully manage to heal from this condition in less then 3 months. My experience eventually led me to write my book which includes the story of my own PPP journey and what needs to be done to get well. It's now been nearly 10 years since I ended up in remission and 5 years since I wrote the book.
Since my remission from palmoplantar pustulosis my drive has always been to help others , to be a voice of hope, a voice I didn't have when I was sick. This is why I love reading recovery stories like Michelle's, a fellow ex. PPP sufferer. It's so helpful for other people in the same situation.
So please take your time to read the interview with Michelle by Autoimmune Wellness. This interview is about Michelle and what she did to heal from palmoplantar pustulosis.
Her healing journey is very inspiring for anyone who's interested in going into remission the natural way without biologics.
If you're interested in finding out more about healing from PPP by follow an autoimmune paleo diet (AIP), do consider follow Autoimmune wellness on Facebook. They post a lot of informative advise.
Also consider join our PPP Facebook Global support group where you can interact with others with Palmoplantar Pustulosis for help and support.
All the best,
Read more Palmplantar Pustulosis Success Stories
I get a lot of emails from readers around the world asking for my help, advice or just a general diet specific question. All my readers’ stories touch me and I’m always doing my best trying to help.
When Sophie contacted me early January this year she was in a very bad state and she had been in and out of the hospital a lot lately and her story affected me a bit more than normally. I deeply empathised with her and could feel her pain.
Sophie told me she’s been suffering severely from the skin disease Palmoplantar Pustulosis for almost 2 years and have had no luck with any natural approach or biologics (biological therapy) . It had caused her a great deal of anxiety and depression and had affected her ability to work, walk, sleep, eat, basically to live a normal life at the age of 26. She was at her wits end as her PPP had now spread to her nails and she had developed wide spread psoriasis as well. This she told me had also affected her self-esteem which hadn’t been very good to begin with.
I think most of us been told by our doctors that palmoplantar Pustulosis is a genetic and chronic (not treatable) skin disease.
The below PPP Success story by Janine is evidence to the contrary. I hope Janine’s story will help and inspire the readers of my blog to get started on your own health/recovery journey by showing that it is possible to get rid of PPP after all.
I would also love to hear from other fellow Palmoplantar pustular psoriasis sufferers who has manage to clear this horrible disease with either conventional medicine or using a natural holistic approach.
Our gathered experiences can help and spread the word that PPP does not have to be a fact of life. If you want to share your own story to the world please contact me, there are so little information about this disease out there and it's a great support to read about others in the same boat.
Take care and do get in contact.....I would love to hear from you....now...over to Janine :)
I think I found your blog one desperate night in the summer of 2014. I have PPP on my right foot. I am 50 years old but it started in 2013 when I was 46. I had no idea what it was. I have learned over the years that it is best to search for a holistic alternative to traditional western medicine. This is why I was trolling the internet, literally typing in "bottom of foot itchy", Some how my crazy random google words led me to your blog. I have been trying to figure out for years how to find you to thank you. The book you wrote is a GIFT to anyone and everyone that is seeking answers and help.
First of all and before I share my story and how I put PPP and arthritis into remission I want to say THANK YOU Asa. I was so desperate for an answer. Your story all of those years ago reinforced my inclination to go the holistic route. You literally saved me months, possibly years of uncertainty and pain. Not to mention thousands of dollars in Dr. Visits that were not going to help at all. I was so depressed, so exhausted from lack of sleep due to the pain and itching. I cried all of the time and I just wanted to curl up in a ball and stay like that forever.
Not long after I got my Palmoplantar Pustulosis diagnosis I started get a pain in the joint of my left index finger and TMJ (jaw stiffness and a clicking jaw). First I thought it was from the overuse of typing on my computer or after been using my hands when cleaning at home. Back than I didn't know about rheumatoid arthritis or RA which is the shorten version of it's name. And I didn't understand there might be a connection to my current Palmoplantar Pustuloisis diagnosis. I had so many various health conditions such as a contentious strep throat infection, Roscea in my face, blisters, cracks and soars on my feet and hands, so the pain in my finger was just something I put up with.
Today I know if you heal one disease by changing your diet and lifestyle as I explain in my book, you will heal them all. The problem is if you have one disease you tend to have other issues as well. This makes sense to me as autoimmune diseases can affect many parts of the body.
When having an autoimmune disease, your immune system attacks healthy cells in your body by mistake or by a way of survive. There are more than 80 types of autoimmune diseases documented and some have similar symptoms. The cause of Palmoplantar Pustulosis (PPP) is scientifically unknown, apart from the fact it's autoimmune in origin as there is an association with other autoimmune diseases, particularly coeliac disease, thyroid disease and type 2 diabetes. Symptoms of rheumatoid arthritis usually start in the small joints of the hands and feet – particularly the main knuckle joints in the hand and usually affect at least two joints, which become painful, red and inflamed, and may start to swell.
I’m thrilled to announce the launch of my book
***** UPDATE: A second edition of my book was published 1 July 2020 where the title changed to How To Treat Palmoplantar Pustulosis Natrually. First Edition released November 2015 was named How To Treat PPP Naturally*****
How To Treat Palmoplantar Pustulosis Naturally: Put Your PPP In Remission And Get Your Life Back In 90 days
I wrote this book because I used to be struggling with PPP but thankfully been cleared from this disease for the last three years without a single outbreak,
My book is the result of me spending hours of studying health and nutrition to find a way to restore my non functional immune system and to found a solution to heal myself from this painful and life destroying disease naturally. After implementing everything I learned along my journey, I successfully manage to heal from PPP.
7 Key areas to focus on during your healing journey
As you know Palmoplantar Pustulosis is a very rare chronic autoimmune disease which is hard to treat using the conventional medical treatments.
If you are looking in to options how to combat PPP using a holistic approach and to heal naturally, changing your diet is crucial and a major part of the healing journey.
I write more about why this is a must and what to eat in the blog post called "What is the perfect diet to follow when healing from Palmoplantar Pustulosis?" and more in depth in my book.
But to be successful you need to make a few lifestyle changes as well apart from only changing your diet , and these are the steps I'm listing below.
I'm going to keep it short and precise.
Bust the stress
Find ways to reduce and manage stress. Do something that relaxes you every day – yoga, meditation, calming music, or even just a hot bath. Seriously you need to remove stress in your life to successfully beat PPP.
Cut the crap
Avoid all processed foods and sugary fizzy drinks. Stop eating sugar. Cut the carbs, and work toward improving gut health. Stop eating gluten!
Invest in good quality supplements. Your body needs good probiotics, zinc, vitamins D3+K2, magnesium.
Juice it up
Adopt a daily juicing regime to give your body all the vitamins and minerals it needs to rebuild and heal. Stick with the greens for maximum impact.
Learn how to cook nutritious and healthy meals that don’t include gluten and sugar.
Just say no
Cut down on alcohol and smoking. Drugs are a definite no-no.
Just say yes – to exercise!
Exercise daily. Go for walks, practice yoga, go swimming. Get active, your body will thank you.
Although there will be challenges along the way, my advice is to visualise the outcome, – how great it will be to walk in nice shoes again, or how you’ll feel when you don’t need to hide your hands. Don’t try to set a certain date for healing, this, as you know, is ludicrous. Instead, focus on improving your health and making lifestyle changes, one day at a time. For me it took 3 months to heal from PPP by following these steps.
As a reminder and for inspiration, please download and print out the infographic below and put it up on the fridge or where you can see it everyday to feel motivated. :)
It doesn't have to be that way.
Dealing with Palmoplantar Pustulosis can make you feel depressed and very lonely at times, mainly because there's not a lot of people (if you think in percentage compare to population) who suffers from the skin disease PPP. Me for sure don't know anyone within my circle of acquaintances who has this disease.
According to this review, depression is the most common of the psychiatric disorders in patients with PPP, and a range between 13 and 28.8% are suffering from it.
The feeling of loneliness often appears because something has triggered a memory of that feeling, not because you are in fact isolated and alone. The brain is designed to pay attention to pain and danger, and that includes the negative feelings you have around your own sickness, this is the reason loneliness gets our attention. Reaching out to other people in the same situation or reading their stories can be very helpful, as depression and loneliness is painful and can confuse you into thinking that you are on your own.
If you're suffering with the chronic skin disease Palmoplantar Pustulosis and find it painful to walk and wear shoes due to the severe pain from when the pustules (blisters) opens up turning in to fissures and starts bleeding, please continue reading.
The worst part of having Palmoplantar pustulosis aside from the itchiness and the fact it doesn't look very pretty, has to be the discomfort and the unbearable pain. Specifically the pain whilst walking, and particularly if there are deep fissures (cracks in the skin) which are also bleeding.
Before I got my PPP diagnosis I had been to over 9 doctor appointments where one of them was a trip to the ER where I was diagnosed with having scabies. Another doctor persisted it was my shoes causing the blisters, and ignoring me when I said it doesn't explain the blisters on my hand?
My onset of PPP started after I had taken a course of antibiotics due to a gum infection around my wisdom tooth. It took several months before developing in to a full on PPP outbreak. It started of with approx 10-15 red pin sized red dots on the sole of my right foot. In the first couple of months it stayed like that, just a few red dots. Gradually my foot started to become itchy as well but there were no blisters. I had no symptoms on my hand as far as I was aware of. My foot actually didn't bother me too much even though I was a bit concerned.
One morning a few months after first noticing the red pin sized dots I woke up with an outbreak of skin bumps and blisters all over my inner thighs, bum, genital area and my foot and hand. It was so soar and itchy at the same time. I made it to the ER where they first thought it was herpes but quickly changed their mind and decided it was the foot and mouth disease, to go on and change their mind again (after a quick google on the Internet) and confirmed it was scabies.
Here’s 5 areas to focus on reducing stress, and improve your chances to heal quicker.
There has been little investigation into the role of stress inPalmoplantar Pustulosis, but in one small study (Saez-Rodriguez 2002 ) anxiety scores were found to be higher in patients with PPP than in control patients. The authors suggested that stress and the worsening of PPP may be related. According to this study most autoimmune diseases are triggered by a major stressors. In fact, 80% of people report uncommon emotional stress before disease onset.
At the time I was diagnosed with PPP I went through a really stressful time in my life. I was working full time in a very stressful and negative environment, as well as being a mother, taking care of a toddler, and I didn't sleep well. I remember back than waking up in the mornings with an abnormal high pulse and having pains in my heart terrified with fear what the day would bring. Not a very good place to be in if you ask me. I silly enough choose to ignore all this and the signs my body was sending me. I know for sure that stress was one of my triggers to onset PPP . At the time I wasn't eating properly which meant my immune system wasn't functioning at the level it should. I had also been on several antibiotic courses due to repetitive strep throat infections.
When I was diagnosed with Palmoplantar Pustulosis, I was determine to find a way to cure myself. There was no way I could accept life, living with a chronic skin disease which was disabling me.
I started to do a lot of research in to nutrition and how to boost and repair a dysfunctional immune system naturally. I discovered the key to improve your health, is basically to start with the gut or the flora which resides there. Your Gut health literally affects your entire body and it's the part of your body where most of the vitamins and minerals are absorbed which are needed for your immune cells to work properly. The only way to do this is to eat a diet containing all the nutrients you body (cells) so badly need to function and to remove the bad stuff from your diet that causes inflammation and don’t have any nutritional value.
I discuss this subject more in depth in my book.
But what does healing your gut actually mean?
How long does it take to heal Palmoplantar Pustulosis?
There’s a lot of information out there how to boost your immune system and how to heal your self from various autoimmune diseases, and I totally understand it can be confusing and difficult who to listen to and where to start. But to boost the immune system is not about tactics such as trying various supplements and lotions and potions which might be helpful but after a while has no effect. Trust me I’ve been there and tried most of them.
To get well from an autoimmune disease you have to understand the whole system. There are a many little pieces to it and the trick is to see how they all fit together for your body to heal as fast as possible.
When my doctor told me I got PPP I was very eager to try anything that might cure me from this horrible chronic skin disease which made me to randomly try to boost my immune system. I tried probiotics for a couple of months and later vitamin D3 to move on trying out biotin, as I had read somewhere that biotin had successfully healed people with Palmoplantar Pustulosis.
I want to write about 4 areas to focus on that are particularly important for you to be able to heal from Palmoplantar Pustulosis. It doesn't matter if you've been suffering with PPP for a long time or if you recently got diagnose. These are certain cornerstones that you can control over and reverse PPP. I discuss all this in more detail I my book How To Treat Palmoplantar Pustulosis Naturally in 90 days.
Since we bought our juicer 6 months ago we have been "using" it daily :)
It's a great little machine from Philips. We all (the three of us) love making our juices and to see the vegetable and fruits quickly resolve and turn in to a delicious nutritious juice :)
It all started with me and my husband watching "Fat, Sick and Nearly Dead" which is a 2010 American documentary film which follows the 60-day journey of Australian Joe Cross across the United States as he follows a juice fast to regain his health under the care of Dr. Joel Fuhrman. Joe is suffering from a rare skin disease just like Palmoplantar Pustulosis. I was blown away and the film was definitely an eye opener. This documentary is available to watch on Netflix.
The documentary explains the importance of what all the minerals and vitamins which you get from fruit and vegetables plays in our body and why we need to consume these on a daily basis. We all know we need to eat our daily greens but I don't think many people know why that is :)
When I was diagnosed with Palmoplantar pustulosis doctors told me there is nothing we can do for you apart from giving you an immune suppressant drug (biologic). Those type of drugs will suppress your immune system even more than it's already is and you should not become pregnant within two years after stop taking them as there is a big risk your unborn will be defect. From my view of things there must be another path.
My way of thinking was, if I managed to destroy and comprimise the immune system (due to stress, a bad diet as well as antibiotics) there must be a way to rebuild my health again. And juicing has been one way to do this
Apart from drinking green juices daily I actually did a three day juice fast back in June which I will write about in a near future :) I felt great and lost a lot a weight and my skin was glowing afterwards, even the cellulite on my thighs seemed to have been reduced.....so all good :)
Another great documentary in the same genre worth watching is Super Juice Me by Jason Vale aka "The Juice Master". He brings eight people who collectively suffered from 22 different chronic diseases and put them on his ‘Juice Only’ diet for 28 days.
The best thing is my 6 year old daughter has slowly but surly started to drink the juices I make. She is the most important thing in my life and her health and well being is my main focus. Today's juice consisted of Apples, oranges, kale, and cucumber...yum
Links that might be of interest:
Joe Cross from Fat Sick And Nearly Dead official website -Reboot With Joe
The One and only Juice Master, check him out - The Juice Master
This documentary is short but "sweet" but a must see for anyone taking their health seriously. It explains in depth about the danger of our over consumption of sugar and the ill effects it causes. Sugar is the root cause to most of our common health issues and I personally feel it's a battle to avoid it. Anyone with an autoimmune disease such as Palmoplantar pustulosis should avoid sugar at all costs during the healing process.
I have a 7 year old daughter and even though we do not buy sweets or sugary foods in our family, Sugar is always given to her by other people such as friends and other family members. Every time there's a family occasion, a birthday party, a special event in school or when hanging out with her friends etc... there's sugar on offer...... It just makes me so frustrated.
How do you avoid sugar.....if you do avoid it?
A year ago I watched two documentaries called Food Matters and Hungry For A Change on Netflix and both of them just blew me away!
Finally somebody captured and made two really informative documentaries and put words on everything I research myself these past few years. I'm a living proof of that the right (real) type of food can improve your immune system and heal any disease. I am so thankful my palmoplantar pustulosis are now gone thanks to diet.
Food Matters sets about uncovering the trillion dollar worldwide 'Sickness Industry', and exposes a growing body of scientific evidence proving that nutritional therapy can be more effective, more economical, less harmful and less invasive than most conventional medical treatment.
Since then the crew behind Food Matters has started up their own equivalent to Netflix called FMTV. There you will find all the latest films and documentaries about all the various health issues we facing today in the modern western world. They are offering a free trial for 7 days, and my advice is to watch as many of their films as possible during the trial, to get an overall understanding over how the immune system works and what you need to do to heal from Palmoplantar Pustulosis and other autoimmune diseases.
I highly recommend you watching these documentaries if you are serious about improving your health.
They are life changing.....let me know what you think?
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1 . Why is it so difficult to diagnose Palmoplantar Pustulosis?