Having Palmoplantar Pustular Psoriasis can make you feel very lonely at times, mainly because there's not a lot of people (if you think in percentage compare to population) who suffers from PPP. Me for sure don't know anyone within my circle of acquaintances who has this disease. The feeling of loneliness often appears because something has triggered a memory of that feeling, not because you are in fact isolated and alone. The brain is designed to pay attention to pain and danger, and that includes the negative feelings you have around your own sickness, this is the reason loneliness gets our attention. Reaching out to other people in the same situation or reading their stories can be very helpful, as loneliness is painful and can confuse you into thinking that you are an outcast.
Due to the lack of understanding from friends and family I started to feel very lonely dealing with this disease on my own. By chance I stumbled across the website Inspire for support, which is a forum for people who suffer from all types of psoriasis including palmoplantar pustuloisis, the forum is presented by National psoriasis foundation in the USA. Even if I've been cleared from PPP for the last three years, I still visit the site occasionally and offering support when I can.
There's a lot of people on Inspire from all over the world who gives their personal advice and express their experiences how to deal with psoriasis and other autoimmune diseases.
There are plenty of people on Inspire who cleared their psoriasis by going down the alternative road by changing their diet and lifestyle around, these are often sufferers who had no luck with whatever their dermatologist previously been recommending. There are equally as many people writing about their experience with taking biologics, sharing both the positive and negative effects of taking these type of agents.
My point is Inspire is very informative with so much knowledge gathered in one place, and when the feeling of loneliness is creeping up on you it's nice to know you are not on you own, it's nice to "meet" other people who totally understand which boat you're in.
It was on Inspire I found two great threads about the miraculous effect vitamin D3 and K2 can have if you combine the two and take them together, this led me to do more research on the subject and came to realise how beneficial these are for anyone suffering from PPP.
According to a Swedish study people who suffer from PPP have a higher rate of calcium in the body compare to a healthy person. Most people do not have a shortage of calcium and for us PPP sufferers we tend to have too much calcium, which are ending up in the wrong places throughout the body due to the absence of other nutrients, especially of vitamin K2 and D3. When these vitamins are lacking, the calcium are transferred from the bones and are than stored at different locations in the connective tissue and especially in the arterial walls. This is called "calcium paradox", which means there is the lack of calcium in the bones and at the same time there's a surplus of calcium in other tissues, including blood vessels. When Calcium is stored in the vessel walls, they become both narrower and more rigid. The missing link is the lack of vitamin K2. I dig deeper on this subject in my book "How To Treat PPP Naturally"
The two ladies who started these threads on Inspire have cleared their psoriasis within weeks by just taking K2 and D3 supplements daily together with fat. They have also posted photos of their progress and inspired loads of people doing the same thing. Unfortunately one of the threads are now deleted, but If you get some time over do consider reading the one which are still there and active "Real Hope" by Flintchick, you'll find a lot of shared information.
Do you find suffering from PPP makes you feel lonely? Do you have support and understanding from the ones closest by you? Please share your thoughts,
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1 . Why is it so difficult to diagnose Palmoplantar Pustulosis?