Having Palmoplantar Pustular Psoriasis can make you feel very lonely at times, mainly because there's not a lot of people (if you think in percentage compare to population) who suffers from PPP. Me for sure don't know anyone within my circle of acquaintances who has this disease. The feeling of loneliness often appears because something has triggered a memory of that feeling, not because you are in fact isolated and alone. The brain is designed to pay attention to pain and danger, and that includes the negative feelings you have around your own sickness, this is the reason loneliness gets our attention. Reaching out to other people in the same situation or reading their stories can be very helpful, as loneliness is painful and can confuse you into thinking that you are an outcast.
If you are PPP sufferer and find it difficult to walk and wear shoes due to the severe pain from when the pustular opens up turning in to fissures and starts bleeding, please continue reading.
The worst part of having Palmoplantar Pustular Psoriasis aside from the itchiness and the fact it doesn't look very pretty, has to be the unbearable pain. Specifically the pain whilst walking, and particularly if there are deep fissures (cracks in the skin) which are also bleeding.
Before I got my PPP diagnosis I had been to over 9 doctor appointments where one of them was a trip to the ER where I was diagnosed with having scabies. Another doctor persisted it was my shoes causing the blisters ignoring me when I said it doesn't explain the blisters on my hand?
My PPP started after I had taken a course of antibiotics due to a gum infection around my wisdom tooth. It took several months before developing in to a full on PPP outbreak. It started of with approx 10-15 red pin sized red dots on the sole of my right foot. In the first couple of months it stayed like that, just a few red dots. Gradually my foot started to become itchy as well but there were no blisters. I had no symptoms on my hand as far as I was aware of. My foot actually didn't bother me too much even though I was a bit concerned.
One morning a few months after first noticing the red pin sized dots I woke up with an outbreak of skin bumps and blisters all over my inner thighs, bum, genital area and my foot and hand. It was so soar and itchy at the same time. I made it to the ER where they first thought it was herpes but quickly changed their mind and decided it was the foot and mouth disease, to go on and change their mind again (after a quick google on the Internet) and confirmed it was scabies.